worried about treatment

[SoulDragon]

Some of you might have figured something is going on in my health department, and yes, it's kinda complicated so here's the short version (hopefully).
I've already been struggling with energy deficiency for many years, somewhere around 10 - 15 years ago it started, and over the years it got worse and worse. Generally they call it fatigue, but i don't agree, it's not simple fatigue, it's much more than that. The everyday things in life cost me much more energy than it would other people, as an example: if i go to the bar an evening with a friend i usually go from 8 pm to 12 pm and am in bed by 1 am, i don't drink alcohol anymore these days because of meds ~grumbels~, it will cost me 2-3 days to recover from it, longer if i couldn't resist drinking 1 beer. If i don't get the chance to recover or ignore the fatigue and am my stubborn self my body will retaliate and knock me down completely with a few days making me feel like i have the flue. So that's the problem in short.
I've been to my general practitioner (is that correct for the regular doctor?) a few times over the years, but i didn't get any further than a bloodtest and her telling me i was perfectly healthy. In the end i gave up because i didn't have the energy left to deal with that and i focused on fighting to get true every day and get everything done that i should/wanted. You can guess that in the end that ended in a huge depression (which my friends on facebook can't have missed...). I finally changed my regular doctor and one thing let to another and i finally got to that one to send me to a specialist in the hospital who at the first meeting told me "No matter what we'll have to do, no matter how long in'll take, we'll figure out what it is", it was the best thing i had heard in a loooong time.
But meanwhile things happened and i wasn't able to fight the fatigue anymore suddenly and i ended up long term sick at home and wasn't able to work even my part-time hours anymore, this all happened about 3 months ago.

....so far for short...

I'm not sure if you are familiar with this or understand what i'm talking about, but here's the thing;
Here every employee has "health benefits" that means that when you get sick your employer will keep paying you (most of) your pay. But that of course means you also have obligations as a sick person to your employer. We have company doctors who's job it is to get you back to work as soon as possible, and there's nothing wrong with that you would say, problem is those company doctors get paid by the company and are on their side of course, and they are less/different educated than the general practitioner. But they do have a big say in what you should do to get back to work and if you don't cooperate the employer is allowed to stop paying you.
Now i'm at the stage where the specialist is still figuring out what disease i have, i get tested and than have to wait for result to do the next examination, although there is one big contestant which is chronic fatigue syndrome/ME, but they can only say you have than when all other possibilities are ruled out.
Now my company doctor is already convinced i have cfs and already had some therapies in mind she could "send me to" when they finally say i indeed have it, at first i didn't think much of it, it sounded pretty good what she told about it. But I assume that when they indeed say i have that the specialist will probably refer me to a doctor who is specialized in that disease. Now my problem is; i get to be treated by 2 completely separate doctors??? If one says i have to get therapy here and the other wants me to go there i have to do 2 therapy's? What if one says to try out this medicine that might help lessen the symptoms and the other says i need to try out those other medicine???
I tried looking it up on who has highest say in this situation, but every article says different things, and mainly it's not favorable to me and they say i have to listen to the company doctor who hardly knows anything about the disease and how to treat it...
Now probably if it's a good doctor she would just follow the specialist....but those company doctors have some extraordinary ideas sometimes...so this makes me very worried about my treatment.. 
(and if there is one thing fatal for my health it is worrying about things)

For now i can only wait and see, and hope for the best i guess...
Sorry it has gotten such long story after all  .

[hirondelle]

That sucks @SoulDragon I have two friends who have suffered severe ME.  They are both through it and now able to function almost like normal, but it seems you always have to protect your health for evermore.  They always know how much energy they have in the tank as it were, and are very careful not to deplete it, protect their immune system, avoid stress etc.  And that is now they are WELL.  They had to do a lot of resting / therapy to get there,,, so you will have to be patient.  If your company bails on your benefits are you entitled to govt support?

 

 

[SoulDragon]

It's very good to hear they are living well, gives me hope .
Well, if i don't agree with the company doctor i can make a legal appeal and government will check who they agree with, if they agree with me my company has to keep paying me, if they agree with the company i'm screwed. If after 2 years i'm still not able to work i'll get government support and my employer can "let me go". And then i have to listen to a government doctor instead of the company doctor until they decide that i won't ever be able to work at all or just 50% or something...if it ever gets that far though.
I really hope i can do what your friends have done! I'm so sick and tired (hah literally) of having to struggle true life, i want to be able to life a good and beautiful life! Work full time and earn allot of money to go traveling to places all over the world . (really, if i would be able to work full-time i would be rich in my opinion )