Kenai Posted September 24, 2017 Share Posted September 24, 2017 (edited) Thank you for bringing it back. Most of you have my facebook I think, but for those who don't I'm currently the frozen wastelands (aka north dakota) with my hubby and 3 year old son. I've been diagnosed with Episodic Ataxia, which is less than fun. As a result, I get to stay home and work on my writing while my hubby goes off to his dream job! (software development). He got into that line of work about six months after being discharged from the Air Force. Edited September 24, 2017 by Kenai 3 Quote Link to comment Share on other sites More sharing options...
Redly Posted September 24, 2017 Share Posted September 24, 2017 Welcome home @Kenai!! Missed you! Sorry to hear about the not-so-much-fun you've had, but glad to hear some of the good stuff 1 Quote Link to comment Share on other sites More sharing options...
Kenai Posted September 24, 2017 Author Share Posted September 24, 2017 The diagnoses was actually a really good thing. It answered so many questions I had, and for a long time I thought I was going crazy. And really, if I'm going to have a brain disease, the type of Ataxia I have is fairly mild when compared to other brain diseases. So in that regard, I'm lucky. 1 Quote Link to comment Share on other sites More sharing options...
Moonhawk Posted September 24, 2017 Share Posted September 24, 2017 Love to see all the lovely people back! Welcome home! 1 1 Quote Link to comment Share on other sites More sharing options...
Lightningfall Posted September 24, 2017 Share Posted September 24, 2017 Welcome home, @Kenai! 1 Quote Link to comment Share on other sites More sharing options...
Phoenix Posted September 24, 2017 Share Posted September 24, 2017 Funny running into you here. 1 1 Quote Link to comment Share on other sites More sharing options...
Ren Posted September 25, 2017 Share Posted September 25, 2017 OOO do I know you??? hugs n kisses to all of NL> LUBS everywhere!!! ITS been sooo long 1 Quote Link to comment Share on other sites More sharing options...
Timberwolf Posted September 25, 2017 Share Posted September 25, 2017 Pounces, hugs and licks @Kenai I'm glad you're back! 1 Quote Link to comment Share on other sites More sharing options...
Ren Posted September 25, 2017 Share Posted September 25, 2017 8 hours ago, Moonhawk said: Love to see all the lovely people back! Welcome home! Your now regretting this...ahahahhahaaahh Silly Hawk...NO HEN HOUSE for YOU!!! Silly other NLeders...We are BACK and you know you just missed it SO fess UP!! 1 Quote Link to comment Share on other sites More sharing options...
SoulDragon Posted September 25, 2017 Share Posted September 25, 2017 Welcome back @Kenai, having something diagnosed is indeed a good thing, although many people misunderstand indeed and be saying "it's good that they can't find anything", it's not good when something is obviously wrong XD. I'm finally at the brink of having the doctors figure out what's wrong with me after so many years as well. Indeed at one point you start doubting yourself, thinking you might be imagining or making things up yourself. Good to hear you're making it positive with being able to work on your writing ~huggles~ 2 Quote Link to comment Share on other sites More sharing options...
hirondelle Posted September 25, 2017 Share Posted September 25, 2017 Yay - Kenai, welcome home. I am sorry what is episodic ataxia? (if it is too personal and you would rather not say let me know) *hugs gently* 1 Quote Link to comment Share on other sites More sharing options...
Kenai Posted September 25, 2017 Author Share Posted September 25, 2017 It's a genetic disorder that messes with the motor cortex. The docs throw around the term atrophy a lot. The simplest explanation I've found is that in a normal brain the motor cortex sends out signals to the muscles, but its all the same signal. My brain sends out different signals. So if I want to talk, instead of my legs getting the same message, they get conflicting messages. Basically anything in my body controlled by a muscle has the potential to mess up. Some lovely side effects are: Difficulty walking (I look like a drunk person) Slurring of speech choking/coughing uncontrollably confusion memory issues sleep issues temporary paralysis easily angered (brain shorts out when stressed and can't process emotions well) muscle weakness (I've noticed this mostly in my hands/arms. I drop things a lot.) spasms in the muscles eye issues (sometimes my vision will go fuzzy for a few seconds) Currently I'm still able to walk mostly. I have a cane I use that helps on my lighter days, and a rollator (old lady walker) on the worse days. I've found I do need a wheelchair for long trips, like a day at the zoo or something otherwise the strain makes me a worthless lump for a couple days. Because its episodic, not every day is like that. I have days where I"m perfectly fine. The doctors tell me eventually I'll lose that, but for now its something I'm happy for. Things that can trigger an "attack" Stress Exercise (which made it really hard to lose all that weight but by god I did it!) Caffeine alcohol heat/cold extremes (considering winters are -60 here, I"m pretty much a lump in winter) Sorry if its too long, but you did ask. 2 Quote Link to comment Share on other sites More sharing options...
SoulDragon Posted September 26, 2017 Share Posted September 26, 2017 oh geez, that sounds really bad 1 Quote Link to comment Share on other sites More sharing options...
Kenai Posted September 26, 2017 Author Share Posted September 26, 2017 eh, its manageable. I'm still able to do most things, I just have to be careful about not tiring myself out. 1 Quote Link to comment Share on other sites More sharing options...
Timberwolf Posted September 27, 2017 Share Posted September 27, 2017 @KenaiI'm glad you found a way to manage it. You make sure to take care of yourself! Quote Link to comment Share on other sites More sharing options...
SoulDragon Posted September 27, 2017 Share Posted September 27, 2017 Aah, that's a relieve to hear ~huggles~ 1 Quote Link to comment Share on other sites More sharing options...
Kethlia Posted September 28, 2017 Share Posted September 28, 2017 Welcome back may posting and being here help with real life and online life too. 1 Quote Link to comment Share on other sites More sharing options...
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