Kenai

1 hour ago, Redly said:

Yay! 

The Forest? 

If that was started up again, I'd be there with freaking bells on.

I'm glad for this so much.  Yeah, I followed most of you on facebook but it was just I don't know... personal and impersonal at the same time.

15 hours ago, Phoenix said:

It didn't take much convincing, but I DO think everyone should be warned that motherhood has given her the magical powers of The Nag.

I'm pretty sure I was bossy before the spawn arrived.

It's a genetic disorder that messes with the motor cortex. The docs throw around the term atrophy a lot.  The simplest explanation I've found is that in a normal brain the motor cortex sends out signals to the muscles, but its all the same signal.  My brain sends out different signals.  So if I want to talk, instead of my legs getting the same message, they get conflicting messages.  Basically anything in my body controlled by a muscle has the potential to mess up.

Some lovely side effects are:

Difficulty walking (I look like a drunk person)

Slurring of speech
choking/coughing uncontrollably

confusion

memory issues

sleep issues

temporary paralysis

easily angered  (brain shorts out when stressed and can't process emotions well)

muscle weakness (I've noticed this mostly in my hands/arms. I drop things a lot.)

spasms in the muscles

eye issues (sometimes my vision will go fuzzy for a few seconds)

Currently I'm still able to walk mostly.  I have a cane I use that helps on my lighter days, and a rollator (old lady walker) on the worse days.  I've found I do need a wheelchair for long trips, like a day at the zoo or something otherwise the strain makes me a worthless lump for a couple days. 

Because its episodic, not every day is like that. I have days where I"m perfectly fine.  The doctors tell me eventually I'll lose that, but for now its something I'm happy for. 

Things that can trigger an "attack"

Stress

Exercise (which made it really hard to lose all that weight but by god I did it!)

Caffeine

alcohol

heat/cold extremes (considering winters are -60 here, I"m pretty much a lump in winter)

Sorry if its too long, but you did ask.

Pizza. Because my toddler decided to get into the meat I was thawing.. Him AND the couch got a bath.

naw, its how we offer prayers the the goddess!

I had two character in the forest rpg!  One that interacted delightfully with Red's characters.

My current story is the ruling emperor is killed by his son. He was an evil dude and the son thought he was saving the world by killing him.  The main character of the novel is his sister, who is left to clean up his mess.  It would be cleaner to have the killer son as the main character, but he's not sane anymore (magic has consequences folks) and I was struggling to write him sympathetically.

I made you join! Mwhahaha.

I think a lot of mom's have that thought.  I love my little guy more than I have words for, and I still have times where I think back fondly before he was born and I just had all that time.  Life was duller then, but so much easier.

*hugs* Having brief thoughts like that doesn't make you a bad mom.  It makes you human.

 

holy fuck.

I'm glad that out of the chaos, your family and friends made it through.  That part must be a huge relief to you.

ten years later, I'm still holding out hope for restoring the forest rpg.  But I don't think enough of the players are back yet. *crosses fingers*

I've noticed it seems to log me out when I receive a notification.

Glad you're here.  Any more news from Puerto Rico?

This is in response to the worst mom in the world comment...

1) are your kids fed and clothed?

2) do they know you love them?

If yes to both, you have a long way to go before you hit worst mom in the world status.

Not only is this place back, but chatting with all of you feels natural... which is saying a lot because I hate talking to people. 

That there are past members that will never join again.

RIP Wings of Fyre.

I'm on a desktop and its doing the same thing.

that makes sense.  Thank you.

bird

whats the deal with it?  How does one get it? 

I'm currently playing Guild Wars 2: Path of Fire.

I really should "pull a red" and disconnect from facebook. 

Selfishly, I'm glad for a chance to chat with you again. RPing with you was always a pleasure.

The diagnoses was actually a really good thing.  It answered so many questions I had, and for a long time I thought I was going crazy. 

And really, if I'm going to have a brain disease, the type of Ataxia I have is fairly mild when compared to other brain diseases.  So in that regard, I'm lucky.

Do you think there would be enough interest to bring it back as well?

Thank you for bringing it back. 

Most of you have my facebook I think, but for those who don't I'm currently the frozen wastelands (aka north dakota) with my hubby and 3 year old son.  I've been diagnosed with Episodic Ataxia, which is less than fun.  As a result, I get to stay home and work on my writing while my hubby goes off to his dream job!  (software development).  He got into that line of work about six months after being discharged from the Air Force.